Privacy Policy

Please read this privacy policy carefully before using this website. This Online Privacy Policy informs our visitors how we treat personal information that you may provide us using this website.

Data Collection

Ionis respects the privacy of visitors to our website and only collects personal information when you provide it to us voluntarily. You may visit our website without telling us anything about yourself. If you contact us and choose to provide personally identifiable information, such as your name, address, telephone number or e-mail address, we may combine that information with data you share with us offline. We will use this information and may share it with other companies and/or individuals (e.g., our partners, consultants, and service providers) for the purpose for which you submitted it to us. For example, if you requested information regarding a particular program, we may use the information you provide to respond to your inquiry or to provide you with information that you requested. We will not send unsolicited messages to users of our website who indicate they do not wish to receive such messages. If you do not wish to receive unsolicited email messages from us, please contact us at info@ionisph.com.

From time to time, our website may be configured to collect domain information such as the pages visited and links clicked. This data is collected for analytics purposes and enables us to become more familiar with which users visit our site, how often they visit and what parts of the site they visit most often. Ionis uses this information to improve our website. No personally identifiable information is gathered in this process. This information is collected automatically and requires no action on your part.

Cookies

Periodically, some pages on this website may use “cookies,” which are small files that the site places on your hard drive for identification purposes. These files are used for site registration and customization the next time you visit us. You should note that cookies cannot read data off of your hard drive. Your web browser may allow you to be notified when you are receiving a cookie, giving you the choice to accept it or not. You can also refuse all cookies by turning them off in your browser. By not accepting cookies, some pages may not fully function and you may not be able to access certain information on this website.

Our website uses Google Analytics, a website analytics service provided by Google, Inc. (“Google”). Google Analytics uses cookies to analyze use patterns and may collect information about your use of our website, including your IP address. More information on Google Analytics can be found
at: www.google.com/policies/privacy/partners/.

Storage and Sharing of Information

Ionis, or in some cases third party companies and/or individuals that work with or for us, may store the personally identifiable data collected via this site in an electronic database. Ionis and these third parties may also exchange such data with each other or with you over the Internet or over intranet systems to process the data, send information to you in response to your request, or otherwise carrying out the purposes described above. We may also release your personally identifiable data in response to a court order, subpoena, search warrant, or applicable law or regulation. In such circumstances we will take appropriate measures to ensure that the requester understands the sensitive nature of the personally identifying information that they may receive.

While Ionis makes reasonable efforts to protect the personally identifiable data collected through its website, please be aware that there is always some risk involved when submitting data over the Internet. We cannot guarantee that our website is 100% safe from illegal tampering or “hacking.” Any data transmitted over the Internet may be at risk.

Children’s Policy

This website is not intended for, or designed to attract, children under the age of 13. As noted above, we do not collect personally identifiable information unless you provided it to us – including an individual’s age.

Residents of California

The California Consumer Privacy Act of 2018 (CCPA) and the California Privacy Rights Act of 2020 (CPRA) gives California residents the right to know what personally identifiable information we collect about them, including whether it is being sold or disclosed to third parties, and the right to prevent us from selling or sharing that information. In addition, if you are a California resident, California law provides you with the following rights with respect to your personal information:

Right of Access/Right to Notice. You have the right to know what personal information we have collected about you, how that information is used, and the third parties to whom the information is disclosed or sold.
Right to Correction. You have the right to request the correction of any inaccurate personal information we may have collected about you. However, we reserve the right to assess the nature and purposes of processing that personal information before completing the request.
Right to Deletion. With limited exceptions prescribed by law, you have the right to request that we delete any personal information we have collected about you.
Right to Restrict the Processing of Sensitive Information. Sensitive information is a subset of personal information and could include information about race or ethnicity, sexual orientation, religious or philosophical beliefs, and health or medical information. You have the right to request that the use of such information, if provided to us, be only used to achieve the purpose(s) for which such information was collected or processed.
Right to Opt-Out of the Sale or Share of Personal Information. Our use of cookies and online advertising tools may be considered sharing or selling of information under certain US state laws. Please see below for additional information on exercising your privacy rights.

To submit requests related to these rights, you may contact us as at privacy-info@ionisph.com. You also may designate an authorized agent to make a request for access on your behalf. We reserve the right to deny requests as permitted by law. Your exercise of these rights will have no adverse effect on the price and quality of our goods or services. We do not discriminate against individuals who have exercised one or more of these rights.

Do-Not-Track Signals and Similar Mechanisms

Some web browsers may transmit “do-not-track” signals to websites with which the browser communicates. Our websites do not currently respond to these “do-not-track” signals.

Correcting or Updating Your Information

We are committed to respecting and protecting the privacy rights of any person whose personal information
we are entrusted with. If you wish to review or correct the personal information you have provided us, please
notify us at privacy-info@ionisph.com.

If you wish to stop receiving e-mails or other communications from us, or if you have submitted personally identifiable information through our website and would like that information deleted from our records, please notify us at info@ionisph.com. Please note that we reserve the right not to remove or amend information provided to us regarding an adverse drug event or any information that we are otherwise required to retain by law or regulation.

Links to Third Party Websites

As a convenience to our visitors, this website may contain links to other sites that may offer information related to an inquiry, such as various patient or advocacy organizations. As stated in more detail in the Terms of Use for our website, these sites are not controlled or maintained by us, and the policies and procedures we described here may not apply to those sites. You should review the terms of usage and other conditions of use posted on those sites to determine the policies and procedures that apply to those sites. We supply these links as a convenience to you, and you agree and acknowledge that your linking to any other websites is at your own risk, and you are responsible for learning about and complying with the terms of usage and other conditions posted on those websites.

Privacy Policy Updates

Ionis may, at any time, revise this Privacy Policy by updating this posting. Data will be handled in accordance with the policy in effect at the time the data is collected.

For Additional Information

If you have any questions about this Privacy Policy, the practices of this website, or your dealings with this website, please contact privacy-info@ionisph.com or info@ionisph.com.

If you are a new supplier, you should have already received an email invite to register for the Portal. To request access to the Portal click here.

Updated: January 2023

Show References

1. Laufs U, Parhofer KG, Ginsberg HN, Hegele RA. Clinical review on triglycerides. Eur Heart J. 2020;41(1):99-109c.
2. Ginsberg HN, Packard CJ, Chapman MJ, Borén J, Aguilar-Salinas CA, Averna M, et al. Triglyceride-rich lipoproteins and their remnants: metabolic insights, role in atherosclerotic cardiovascular disease, and emerging therapeutic strategies-a consensus statement from the European Atherosclerosis Society. Eur Heart J. 2021;42(47):4791-806.
3. Virani SS, Morris PB, Agarwala A, Ballantyne CM, Birtcher KK, Kris-Etherton PM, et al. 2021 ACC Expert Consensus Decision Pathway on the management of ASCVD risk reduction in patients with persistent hypertriglyceridemia: A report of the American College of Cardiology Solution Set Oversight Committee. J Am Coll Cardiol. 2021.
4. Nordestgaard BG, Varbo A. Triglycerides and cardiovascular disease. Lancet. 2014;384(9943):626-35.
5. Packard CJ. Remnants, LDL, and the quantification of lipoprotein-associated risk in atherosclerotic cardiovascular disease. Curr Atheroscler Rep. 2022;24(1534-6242 (Electronic)):133-42.
6. Wang Y. Higher fasting triglyceride predicts higher risks of diabetes mortality in US adults. Lipids Health Dis. 2021;20(1):181.
7. Grundy SM, Stone NJ, Bailey AL, Beam C, Birtcher KK, Blumenthal RS, et al. 2018 AHA/ACC/AACVPR/AAPA/ABC/ACPM/ADA/AGS/APhA/ASPC/NLA/PCNA Guideline on the management of blood cholesterol: A report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019;73(24):e285-e350.
8. Chyzhyk V, Brown AS. Familial chylomicronemia syndrome: A rare but devastating autosomal recessive disorder characterized by refractory hypertriglyceridemia and recurrent pancreatitis. Trends Cardiovasc Med. 2020;30(2):80-5.
9. National Lipid Association. Lifestyle changes to reduce triglycerides: Advice from the National Lipid Association Clinician’s Lifestyle Modification Toolbox. https://www.lipid.org/sites/default/files/lifestyle_changes_to_reduce_triglycerides.final_edits.7.17.16_0.pdf.
10. Santos-Baez LS, Ginsberg HN. Hypertriglyceridemia-causes, significance, and approaches to therapy. Front Endocrinol (Lausanne). 2020;11:616.
11. Sandesara PB, Virani SS, Fazio S, Shapiro MD. The forgotten lipids: Triglycerides, remnant cholesterol, and atherosclerotic cardiovascular disease risk. Endocr Rev. 2019;40(2):537-57.
12. Carrasquilla GD, Christiansen MR, Kilpeläinen TO. The genetic basis of hypertriglyceridemia. Curr Atheroscler Rep. 2021;23(8):39.
13. Dron JS, Dilliott AA, Lawson A, McIntyre AD, Davis BD, Wang J, et al. Loss-of-function CREB3L3 variants in patients with severe hypertriglyceridemia. Arterioscler Thromb Vasc Biol. 2020;40(8):1935-41.
15. Moulin P, Dufour R, Averna M, Arca M, Cefalù AB, Noto D, et al. Identification and diagnosis of patients with familial chylomicronaemia syndrome (FCS): Expert panel recommendations and proposal of an "FCS score". Atheroscler. 2018;275:265-72.
16. Nawaz H, Koutroumpakis E, Easler J, Slivka A, Whitcomb DC, Singh VP, et al. Elevated serum triglycerides are independently associated with persistent organ failure in acute pancreatitis. Am J Gastroenterol. 2015;110(10):1497-503.
17. Stroes E, Moulin P, Parhofer KG, Rebours V, Löhr JM, Averna M. Diagnostic algorithm for familial chylomicronemia syndrome. Atheroscler Suppl. 2017;23:1-7.
18. Bedogni G, Bellentani S, Miglioli L, Masutti F, Passalacqua M, Castiglione A, et al. The Fatty Liver Index: a simple and accurate predictor of hepatic steatosis in the general population. BMC Gastroenterol. 2006;6:33.
19. Koehler EM, Schouten JN, Hansen BE, Hofman A, Stricker BH, Janssen HL. External validation of the fatty liver index for identifying nonalcoholic fatty liver disease in a population-based study. Clin Gastroenterol Hepatol. 2013;11(9):1201-4.
20. Nivukoski U, Niemelä M, Bloigu A, Bloigu R, Aalto M, Laatikainen T, et al. Combined effects of lifestyle risk factors on fatty liver index. BMC Gastroenterol. 2020;20(1):109.
21. Paquette M, Bernard S. The evolving story of multifactorial chylomicronemia syndrome. Front Cardiovasc Med. 2022;9:886266.
22. Vincent AM, Hinder LM, Pop-Busui R, Feldman EL. Hyperlipidemia: a new therapeutic target for diabetic neuropathy. J Peripher Nerv Syst. 2009;14(4):257-67.
23. Benefits of physical activity: Center for Disease Control and Prevention. [https://www.cdc.gov/physicalactivity/basics/pa-health/index.htm.
24. Tari AR, Nauman J, Zisko N, Skjellegrind HK, Bosnes I, Bergh S, et al. Temporal changes in cardiorespiratory fitness and risk of dementia incidence and mortality: a population-based prospective cohort study. Lancet Public Health. 2019;4(11):e565-e74.
25. Whole person health: What you need to know: National Center for Complementary and Integrative Health. [https://www.nccih.nih.gov/health/whole-person-health-what-you-need-to-know.
26. Berglund L, Brunzell J, Sacks FM. Patient information page from The Hormone Foundations. Patient guide to the assessment and treatment of hypertriglyceridemia (high triglycerides). J Clin Endocrinol Metab. 2012;97(9):31a-2a.
27. Ito MK. Chapter 6. Patient-centered care. In: Gogia S, editor. Fundamentals of Telemedicine and Telehealth: Academic Press; 2020:115-126.
28. Barry MJ, Edgman-Levitan S. Shared decision making--pinnacle of patient-centered care. N Engl J Med. 2012;366(9):780-1.
29. Elwyn G, Frosch D, Thomson R, Joseph-Williams N, Lloyd A, Kinnersley P, et al. Shared decision making: a model for clinical practice. J Gen Intern Med. 2012;27(10):1361-7.
30. Jacobson TA, Maki KC, Orringer CE, Jones PH, Kris-Etherton P, Sikand G, et al. National Lipid Association recommendations for patient-centered management of dyslipidemia: Part 2. J Clin Lipidol. 2015;9(6 Suppl):S1-122.e1.
31. Banerji A, Anderson J, Johnston DT. Optimal management of hereditary angioedema: Shared decision-making. J Asthma Allergy. 2021;14:119-25.
32. Zeman H, Cavanaugh E, Metallinos-Katsaras E, Ireland K, Pojednic R. Improved long-term outcomes in high-risk patients receiving registered dietitian nutritionist care. Endocr Metab Sci. 2021;2:100078.
33. Morrell J, Wierzbicki T. 10 Steps before you refer for: Lipids. Br J Cardiol. 2009;16:242-5.
34. Davidson M, Stevenson M, Hsieh A, Ahmad Z, Roeters van Lennep J, Crowson C, et al. The burden of familial chylomicronemia syndrome: Results from the global IN-FOCUS study. J Clin Lipidol. 2018;12(4):898-907.e2.
35. Lipid Panel: Cleveland Clinic. [https://my.clevelandclinic.org/health/diagnostics/17176-lipid-panel.
36. Academy of Nutrition and Dietetics. Medical nutrition therapy (MNT) systematic review [https://www.andeal.org/topic.cfm?menu=3949.

Subscribe to KnowYourTGs.com

Next Steps: Sync an Email Add-On